Cancer groups face funding crisis during the pandemic
As the coronavirus disease 2019 (COVID‐19) pandemic persisted through the spring and fall, Ovarian Cancer Canada worked to quickly transition its largest annual fundraiser—the Walk of Hope, held during September in 35 cities—to a virtual format. Instead of gathering for in‐person events filled with cheering onlookers, participants walked alone or with just a few relatives and friends in their own neighborhoods to raise money for the nonprofit.
Ovarian Cancer Canada’s quick pivot is just 1 example of how cancer advocacy organizations worldwide have had to adapt nearly overnight to the challenges of the COVID‐19 pandemic. Moreover, with significant declines in corporate sponsorships and individual donations and with the cancellation of major in‐person fundraising events, some organizations have been forced to make sizable cuts to their funding and services.
“Nearly all of [the groups] are projecting a drop in income—some up to 50%,” she says. “These organizations had to change on a dime the way they operate, in terms of how they provide services, and those that fund research have all been negatively impacted in terms of how much they can continue to invest.”
- Ninety‐two percent of the organizations provide support services to the community. The groups typically serve as a critical point of contact for vulnerable people, and this increased during the pandemic: approximately 57% of the organizations reported a rise in the number of calls and emails that they received.
- Many organizations are struggling financially, and only 5% felt confident about their current financial position.
- Seventy‐nine percent predicted that their income would decline during the next 12 months. The average expected decrease was 46%, with responses ranging from 7% to 95%.
- Seventy‐one percent reported the need to review budgets and available income, and more than half have already had to reduce costs.
- Eighty‐nine percent of the organizations said that they had to alter their services for patients with cancer in some way. Furthermore, 68% of the organizations involved in health professional education activities had to change their services, shift materials online, or temporarily stop their programs.
- Of the organizations that fund research, only 48% expect to resume funding that research when the pandemic is over.
According to MacKay, the goal of the survey was to highlight the hardship that patient advocacy and cancer organizations are experiencing and the value that they bring, particularly with regard to providing direct services to patients. Amid fears that the fall could bring another spike in COVID‐19 cases, the coalitions plan to conduct a follow‐up survey in December to determine how these organizations have fared 6 months after the initial survey.
“Our concern is a second wave and lack of preparation in the health care system in terms of cancer services, as well as fatigue among health care workers,” MacKay says. “We need to be in front of it.”
- Ensuring that there are hospitals in the community that have been designated as COVID‐19–free centers where patients with cancer can be treated or, if this is not possible, that hospitals provide onsite separation of patients with cancer;
- Ensuring rapid catch‐up to post–COVID‐19 levels of cancer treatment, screening, and follow‐up;
- Incorporating ambulatory services that can be delivered in a patient’s home;
- Providing telemedicine services that help to decrease the need for in‐person hospital visits; and
- Developing innovative ways to involve family and caregivers in consultations, such as virtual sessions.
Cancer organizations globally are focusing on the areas of greatest need, and in some cases, that means they have had to reduce their advocacy activities to bolster direct patient services. Over time, those reductions could have serious implications, MacKay says. Still, she notes, some positives for the cancer community have arisen from the COVID‐19 crisis. For example, the coalition of global cancer organizations that conducted the survey will likely collaborate on future, shared areas of concern. In addition, the use of telephone support groups and other virtual events has enabled more people to participate than ever before.
“I’m very proud of the sector I’m working in,” MacKay says, noting that her colleagues have been innovative and resourceful in a difficult time. “I feel strongly about acknowledging the huge contribution that cancer patient advocacy groups make, and I think local and national governments should be thinking about them as a crucial part of the health economy.”
Meanwhile, leaders of organizations such as Ovarian Cancer Canada are continuing to work hard to educate and reach out to their communities.
“Cancer didn’t go away just because of COVID‐19, and we need to be a loud voice to make sure people are paying attention to their health and symptoms,” Baugh says.
Published at Wed, 25 Nov 2020 03:56:15 +0000