My Cancer Relapse, Latest Treatments & Clinical Trials: Multiple Myeloma | Connie’s Story (2 of 3)
Connie first noticed small bumps on her arms, light purple in color, but they were explained away by her doctors. Finally, they were growing fast enough for her to push for more examination. That’s when she learned the multiple myeloma had relapsed. In video 2 of our 3-part series, Connie shares all the treatments she tried, combinations including Velcade, Revlimid (lenalidomide), Cytoxan, dexamethasone, Pomalyst, CAR T-cell therapy, and Blenrep. She recalls the most impactful side effects and shares tips on getting through them.
In this Series: Our 3-part series with Connie covers her entire multiple myeloma story, from how she got diagnosed and first-line treatment, to her relapse and continuing different kinds and combinations of therapies, through to quality of life issues and how she lives life with multiple myeloma now. Thank you for sharing your story, Connie!
Video Series:
(1 of 3) How I Got Diagnosed with Cancer (Again): https://youtu.be/gr-YZdZrw4g
(2 of 3) My Cancer Relapse, Newest Treatments & Clinical Trials: This Video
(3 of 3) Living with Cancer like a Chronic Disease: https://youtu.be/ICkmBgGmYMs
Full story & transcript → https://www.thepatientstory.com/multiple-myeloma-relapse-connie-h
The interview has only been edited for clarity.
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Contents of this video:
00:00 – Intro
00:32 – The 1st signs cancer was back
01:49 – Treatment decision-making discussion with the doctor
03:43 – Considering long-term side effects
04:19 – Dealing with neuropathy
06:31 – Experience with POMALYST
07:37 – The dexamethasone (steroid) experience
08:57 – Dealing with new tumors
09:52 – Dealing with each relapse
12:45 – The Darzalex and Pomalyst experience
16:32 – CAR T-cell therapy clinical trials
18:48 – The 2nd Clinical Trial at National Institutes of Health (NIH)
20:55 -Starting BLENREP treatment
22:17 – BLENREP side effects
26:13 – Next steps in treatment
27:58 – Tips for dealing with insurance
30:51 – Waiting for the clinical trial to start
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